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International SBMA Project (KDA)
Sponsor: Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta
Summary
This project aims at: connecting the existing registries and databases across different countries by comparing the information collected, the administered scales, the biochemical investigations performed; performing a common analysis of fully anonymized data collected in the existing registries and databases by researchers adhering to the study to obtain cross-sectional and longitudinal data. Centres from the following countries have accepted the invitation to join Italy in this project: UK, US, Japan, France, Germany, Korea, Finland, Greece, Canada, Turkey.
Official title: Connecting SBMA National Registries/Databases: a Retrospective Study
Key Details
Gender
MALE
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
700
Start Date
2024-07-29
Completion Date
2026-12
Last Updated
2026-03-02
Healthy Volunteers
No
Locations (1)
Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, Italy