Clinical Research Directory

EPOCH-Economics and Patient Outcomes in China in Haemophilia

Sponsor: Institute of Hematology & Blood Diseases Hospital, China

Summary

The overarching goal of the EPOCH project is to: * Support a broad and robust needs assessment in the haemophilia space in China * Measure the variability in the needs and care provision * Generate outcome data (health economic outcomes and supporting clinical and PRO data) to enable measuring the impact of different treatment modalities and different levels of treatment access PRIMARY OBJECTIVES * Determine the burden of haemophilia in China, and the determinants of its variability * Determine the costs of haemophilia care in China, and the determinants of its variability SECONDARY OBJECTIVES * Measure treatment patterns and their variability * Measure levels of access to care * Estimate the impact of haemophilia and its treatment of patients reported outcomes * Understand consistency of care by centres/geography/demographics

Key Details

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Locations (1)