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The Cancer Stage Shifting Initiative: Registry and Biorepository to Research and Address Health Disparities in Cancer Care
Sponsor: National Minority Quality Forum
Summary
The goal of this observational study is to establish a patient registry and a biorepository (sample collection and storage) to investigate health disparities, access, and barriers to cancer screening and early detection technologies. The registry and biorepository will serve as a resource to support Cancer Early Detection (CED) screenings and future research focused on communities at increased risk for cancer. The study seeks to address: •Barriers and disparities in cancer prevention, screening, and treatment, particularly in historically underrepresented populations. Participants will: * Attend a minimum of five clinic visits over a five-year period for scheduled annual assessments while actively enrolled in the study. * Complete questionnaires at each visit that collect information on their medical history, cancer history, and family cancer history. * Allow relevant health information from their electronic health records (EHR) to be collected and reviewed. * Provide blood, saliva, and stool samples for research purposes. * Enter a long-term follow-up period for an additional five years.
Key Details
Gender
All
Age Range
35 Years - Any
Study Type
OBSERVATIONAL
Enrollment
100000
Start Date
2025-03-11
Completion Date
2039-03
Last Updated
2026-04-08
Healthy Volunteers
Yes
Conditions
Locations (2)
Life in 3D Health Services
Flint, Michigan, United States
Grace Clinic
Houston, Texas, United States