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Developing Resource Interventions for Healthcare Professionals and Patients to Improve Knowledge About Fertility in Primary Ciliary Dyskinesia
Sponsor: University of Southampton
Summary
This project will involve working with people with PCD and medical professionals to develop resources that will help patients and the people providing their care to better understand fertility and pregnancy safety in people with this condition.
Official title: REproductive Health in PRimary Ciliary Dyskinesia: Developing User-informed Clinical and Educational Resources (REPRoDUCE)
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
30
Start Date
2026-04-01
Completion Date
2029-03-31
Last Updated
2026-04-15
Healthy Volunteers
No
Interventions
Online educational resource
Co-developed educational resource for patients
Toolkit for healthcare professionals
co-developed online educational toolkit for healthcare professionals