Clinical Research Directory

Austrian PBC Registry

Sponsor: Medical University of Vienna

Summary

The goal of this registry is to better understand how primary biliary cholangitis develops over time, including the role of disease-related biomarkers, complications of the disease, and symptom burden. Patients with primary biliary cholangitis treated at participating centres in Austria will be invited to take part in this prospective registry. Participation in an associated biobank is optional. Clinical and laboratory data will be collected, and patients will be followed regularly through scheduled clinic visits. In addition, biological samples (serum, plasma, and, if available, liver tissue) may be collected and stored in the biobank for future research.

Official title: Characterisation of Patients With Primary Biliary Cholangitis in Austria - A Prospective Registry and Biobank

Key Details

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Locations (11)