Clinical Research Directory
Browse clinical research sites, groups, and studies.
Treatment Patterns, Biochemical Profiles and Clinical Outcomes in Adults With X-Linked Hypophosphatemia
Sponsor: Novo Nordisk A/S
Summary
The purpose of this study is to better understand how X-linked hypophosphatemia (XLH) affects the body and daily life. Phosphate levels are critical in managing XLH, we aim to study how these levels change in patients taking burosumab and how they relate to bone health, overall disease burden and XLH-related conditions.
Official title: Treatment Patterns, Biochemical Profiles and Clinical Outcomes in Adults With X-Linked Hypophosphatemia - A Prospective Observational Cohort Study - IBIS XLH
Key Details
Gender
All
Age Range
18 Years - 64 Years
Study Type
OBSERVATIONAL
Enrollment
100
Start Date
2026-07-07
Completion Date
2030-07-07
Last Updated
2026-05-26
Healthy Volunteers
No
Conditions
Interventions
No treatment given
No treatment given
Locations (23)
Yale University School of Medicine
New Haven, Connecticut, United States
Indiana University Hospital
Indianapolis, Indiana, United States
The Ohio State University Wexner Medical Center (OSUWMC) - CarePoint East
Columbus, Ohio, United States
Vanderbilt University Medical Center
Nashville, Tennessee, United States
Northern Sydney Cancer Centre-Royal North Shore Hospital (RNSH)
St Leonards, New South Wales, Australia
Westmead Hospital
Westmead, New South Wales, Australia
Monash University - Monash Medical Centre (MMC)
Clayton, Victoria, Australia
Bone Research and Education Centre
Oakville, Ontario, Canada
CHU de Bicetre
Le Kremlin, France
Hopital Cochin - APHP
Paris, France
Charite Campus Virchow
Berlin, Germany
Endokrinologikum Goettingen
Göttingen, Germany
Universitat Wurzburg Koenig-Ludwig-Haus
Wuezburg, Germany
Office of Francesco Di Costanzo, MD
Sesto Fiorentino, Florence, Italy
Istituto Auxologico Italiano
Milan, Italy
Azienda Ospedaliera di Padova - U.O.C. di Gastroenterologia
Padova, Italy
Fondazione Policlinico Universitario Campus Bio-Medico
Rome, Italy
Fukuoka University - Fukuoka University Hospital
Fukuoka, Fukuoka, Japan
Okayama Saiseikai Outpatient Center Hospital
Okayama, Okayama-ken, Japan
The University of Tokyo Hospital
Bunkyo-ku, Tokyo, Japan
Iseikai International General Hospital
Osaka, Japan
Japan Community Healthcare Organization Osaka Hospital
Osaka, Japan
Leiden University Medical Center (Leids Universitair Medisch Centrum (LUMC))
Leiden, Netherlands