Clinical Research Directory

Adult Bladder and Quality of Life Evaluation in Spina Bifida

Sponsor: Blayne Welk

Summary

Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Researchers will ask people with SB to complete a survey about how they manage their bladder and how it impacts their daily lives. The main goal is to find out if certain bladder management methods are associated with a better quality of life. This information could help doctors make better treatment decisions and counsel young people living with SB.

Official title: Patient Reported Outcomes for Bladder Management Strategies in Young Adults With Spina Bifida

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