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Feasibilty and Acceptability of Amani
Sponsor: Massachusetts General Hospital
Summary
Adults with sickle cell disease (SCD) experience severe pain, emotional distress, and social isolation that diminish their quality of life. This project will test Amani, a novel virtual reality supportive care intervention designed to improve coping skills and strengthen peer support. If feasible and acceptable, Amani offers an accessible digital supportive care intervention to improve psychological well-being and quality of life among individuals living with SCD and potentially other chronic illnesses.
Official title: Feasibilty and Acceptability of Amani, a Virtual Reality Application for Adults With Sickle Cell Disease
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
40
Start Date
2027-01-01
Completion Date
2028-04-30
Last Updated
2026-06-15
Healthy Volunteers
No
Conditions
Interventions
Amani
Amani is a multi-component VR supportive care intervention specifically tailored for adults with SCD. Amani integrates mindfulness-based pain management exercises, psychoeducational modules to build adaptive coping strategies, and facilitated VR group sessions to reduce isolation and foster peer support.
Locations (1)
Massachusetts General Hospital
Boston, Massachusetts, United States