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Improving Outcomes for Juvenile Idiopathic Arthritis
Sponsor: Region Stockholm
Summary
Children and parents often experience uncertainty and stress when juvenile idiopathic arthritis (JIA) is first diagnosed, which creates a need for structured support. Juvenile Idiopathic Support Program (JASP-1) provide patient-and family centered support during the first year after diagnosis. However, little is known about how a support program like JASP-1 can influence outcomes. Therefore, this study aimed to longitudinally examine registry data from children who participated in JASP 1 and to compare the outcomes with registry data from a matched control group.
Official title: Improving Outcomes for Children Newly Diagnosed With Juvenile Idiopathic Arthritis Through a Structured Support Program (JASP-1) - A Longitudinal Register Study
Key Details
Gender
All
Age Range
0 Years - 16 Years
Study Type
INTERVENTIONAL
Enrollment
116
Start Date
2019-08-15
Completion Date
2026-02-19
Last Updated
2026-06-22
Healthy Volunteers
No
Conditions
Interventions
The intervention was a one year support program JASP-1
Seven structured visits with a patient-and family-centered approach was used in the JASP-1 program, in which children newly diagnosed with JIA and their parents were invited to participate in.
Locations (1)
Karolinska University Hospital
Stockholm, Sweden