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Spinal Muscular Atrophy and School Transitions
Sponsor: Robert Jones and Agnes Hunt Orthopaedic and District NHS Trust
Summary
A qualitative questionnaire-based study to explore the experiences of children and young people with Spinal Muscular Atrophy (SMA) and their families regarding school transition and educational participation. The study objectives: To identify barriers to successful educational transition. To advocate for patients and families during the transitional process. To explore experiences of inclusion, access and support within school settings. To understand the coordination between education, healthcare and support services. To inform the development of practical, patient-centred guidance to improve educational transitions for children and young people with SMA.
Official title: Exploring Educational Transitions in Children and Young People With Spinal Muscular Atrophy: A Qualitative Study of Patient and Family Experiences.
Key Details
Gender
All
Age Range
Any - 25 Years
Study Type
OBSERVATIONAL
Enrollment
20
Start Date
2026-08-10
Completion Date
2027-02-28
Last Updated
2026-07-22
Healthy Volunteers
No
Conditions
Locations (1)
The Robert Jones & Agnes Hunt Orthopaedic Hospital
Oswestry, Shropshire, United Kingdom