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IN-TALK: Co-producing a Hospice Intimacy Support Toolkit in England
Sponsor: Dorothy House Hospice
Summary
People receiving hospice care may experience concerns about intimacy, closeness and physical affection that can affect their quality of life and wellbeing. However, healthcare professionals often report feeling uncertain about how to initiate or respond to conversations about intimacy needs. This can result in unmet needs and missed opportunities to provide holistic, person-centred care. The aim of the IN-TALK study is to co-produce a hospice intimacy support toolkit to support healthcare professionals in initiating and responding to conversations about intimacy needs with people receiving hospice care in England. This prospective mixed methods observational study uses Experience-Based Co-Design (EBCD) as its co-production methodology to develop a hospice intimacy support toolkit. Findings from the surveys will inform a series of co-production workshops involving hospice service users and healthcare professionals. Together, participants will co-produce the content and design of a hospice intimacy support toolkit to support person-centred care in hospice services across England.
Official title: Co-producing a Hospice Intimacy Support Toolkit to Enable Intimacy Needs Conversations in England
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
794
Start Date
2026-11-01
Completion Date
2028-05-31
Last Updated
2026-07-30
Healthy Volunteers
Yes
Interventions
Experience-Based Co-Design (EBCD) workshops
Experience-Based Co-Design (EBCD) workshops are used as a co-production research method to collaboratively develop a hospice intimacy support toolkit with hospice service users and healthcare professionals. The workshops are part of the research methodology and are not a therapeutic or clinical intervention.