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The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry
Sponsor: Appendix Cancer Pseudomyxoma Peritonei Research Foundation
Summary
ACPMP's first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.
Official title: The ACPMP Research Foundation Appendix Cancer/PMP Patient Registry
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
10000
Start Date
2026-02-02
Completion Date
2030-02-01
Last Updated
2026-08-17
Healthy Volunteers
No
Conditions
Locations (1)
ACPMP
Springfield, Pennsylvania, United States