Clinical Research Directory

Inclusion Criteria for EHR Data Collection: * ICD-10-CM or SNOMED-CT diagnosis code for SLE * Completed a pediatric rheumatology outpatient clinical visit at a participating implementation site within 12 months of each data collection timepoint Inclusion Criteria for the Patient Survey Group: * Diagnosis of childhood-onset Systemic Lupus Erythematosus (cSLE) * Must have had a pediatric rheumatology clinical visit at a participating implementation site within 12 months of each data collection timepoint * Age 12 years or older at enrollment Inclusion Criteria for the Caregiver Survey Group: * Individuals at least 18 years of age * Parent or guardian of a child with cSLE who is followed by a care team at a participating site Inclusion Criteria for the Lupus Care Team Member Survey Group: * Individuals at least 18 years of age * Health care team members within a pediatric subspecialty that manages patients with cSLE at a participating site Inclusion Criteria for the Patient Interview Group: * Diagnosis of childhood-onset Systemic Lupus Erythematosus (cSLE) * Completed a clinical visit in the participating site's outpatient rheumatology clinic within the 12 months prior to enrollment * Age 12 years or older at enrollment * Able to provide verbal assent if below age 18 years of age or verbal consent if age 18 years and older. For minors, verbal parental/guardian permission (informed consent) is required. * Have access to a device with audio or audiovisual conferencing capabilities Inclusion Criteria for the Caregiver Interview Group: * Individuals 18 years old or older at enrollment * Parent or guardian of a child with cSLE who is followed by a care team at a participating pediatric rheumatology site and has completed a clinical visit within the 12 months prior to enrollment * Able to provide verbal informed consent prior to the interview * Have access to a device with audio or audiovisual conferencing capabilities Inclusion Criteria for the Lupus Care Team Member Interview Group: * Individuals ages 18 years of age or older at enrollment * Health care team members that are in a pediatric subspecialty clinic that manages patients with cSLE at a participating site * Able to provide verbal informed consent prior to the interview * Have access to a device with audio or audiovisual conferencing capabilities Exclusion Criteria for all Interview Groups: * Unable or without cognitive capacity to participate in an interview, as determined by the investigator(s). * No prospective interview participants will be excluded on the basis of sex, race, ethnicity, or language preference.