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Clinical, Economic,and Psychosocial Burden of Thalassemia in Sohag
Sponsor: Randa Elham Hamam
Summary
This study aims to assess the clinical, economic, and psychosocial burden of thalassemia among affected children in Sohag. Clinically, the study will evaluate disease severity, transfusion requirements, iron overload, complications, and treatment-related factors. Economically, it will estimate direct medical costs, including transfusions, medications, investigations, hospital visits, and other healthcare expenses, as well as indirect costs such as school/work absenteeism and caregiver burden. Psychosocial aspects will include assessment of quality of life, psychological well-being, social functioning, and the impact of the disease on patients and their families.
Official title: The Hidden Burden of Thalassemia in Sohag Clinical Economic and Psychosocial Perspectives
Key Details
Gender
All
Age Range
2 Years - 18 Years
Study Type
OBSERVATIONAL
Enrollment
100
Start Date
2026-08
Completion Date
2027-07
Last Updated
2026-08-31
Healthy Volunteers
No