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Testing the Feasibility of an Online Guided-writing Intervention Designed for Informal Caregivers of People With Parkinson's Disease
Sponsor: University of Reading
Summary
When informal caregivers of people with Parkinson's disease treat themselves harshly, they can experience psychological distress. To help them show themselves the same kindness and understanding that they would show another person in the same situation, we developed an online guided-writing intervention. This involved submitting four writing exercises where they first described a difficult situation, then wrote about how a compassionate other would respond to them during that challenge. The goal of this feasibility study was to learn if caregivers could complete the full intervention alongside providing care. We also interviewed some of those caregivers who completed the full intervention about their experiences of writing and submitting exercises.
Official title: Single-group Feasibility Study and Process Evaluation of a Guided Reflective Writing Intervention for Informal Caregivers of People With Parkinson's Disease
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
47
Start Date
2024-04-30
Completion Date
2025-09-30
Last Updated
2026-09-04
Healthy Volunteers
No
Conditions
Interventions
An online guided-writing intervention that uses guidance based on self-compassion principles
Four writing exercises that can be completed at the caregiver's convenience, albeit a maximum of one exercise per day. Caregivers can also use a 'save and return function' so do not have to write continuously and complete in one sitting
Locations (1)
School of Psychology and Clinical Language Sciences
Reading, United Kingdom