Clinical Research Directory
Browse clinical research sites, groups, and studies.
Health-related Quality of Life in Chiari Malformation Type 1 - A National Cross-Sectional Patient Survey
Sponsor: Karolinska Institutet
Summary
The goal of this observational survey study is to investigate factors that may affect the health-related quality of life (HRQoL) in adults with Chiari malformation type 1 (CM1). The main questions it aims to answer are: How do CM1 patients rate their HRQoL compared to the general population? Are there any factors that lead to better or worse HRQoL in CM1 patients? Is there a difference in HRQoL in operated versus non-operated CM1 patients? Participants will be identified via the Swedish National Board of Health and Welfare's Patient register. They will be asked to participate in a survey of HRQoL containing standardized questionnaires, and their answers will be analyzed together with data from the Patient register. Their questionnaire answers will also be compared to normative Swedish data.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
1004
Start Date
2026-08-12
Completion Date
2026-12
Last Updated
2026-09-14
Healthy Volunteers
No
Conditions
Locations (1)
Department of Clinical Neuroscience, Karolinska Institutet
Stockholm, Sweden