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Hereditary Haemorrhagic Telangiectasia (HHT)

Tundra lists 1 Hereditary Haemorrhagic Telangiectasia (HHT) clinical trial. Each listing includes eligibility criteria, study locations, and direct links to research sites in the Tundra directory.

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NOT YET RECRUITING

NCT07474428

Quality of Life in Pediatric Participants With HHT

This observational study evaluates health-related quality of life (HR-QoL) in pediatric and young adult patients aged 2-25 years with Hereditary Hemorrhagic Telangiectasia (HHT). Eligible participants are patients receiving care at Cincinnati Children's Hospital Medical Center and / or their caregivers. Participants will complete validated quality-of-life questionnaires assessing physical, emotional, social, and disease-specific functioning over the past 30 days. A paired retrospective chart review will assess disease severity and clinical utilization, including procedures and imaging studies. The primary objective is to describe mean QoL scores for this population. Secondary objectives include evaluating associations between QoL scores, disease severity, and clinical utilization.

Gender: All

Ages: 2 Years - 25 Years

Updated: 2026-03-16

1 state

Hereditary Haemorrhagic Telangiectasia (HHT)