Clinical Research Directory

Aim 3: Pilot Study of a Serious Game to Promote Transition Readiness Skills

This study involves testing a new video game designed to support adolescents with congenital heart disease (CHD) in preparing to manage their health independently. The game aims to teach essential skills such as communicating with healthcare providers, understanding medical information, and managing appointments and medications. This small pilot study will evaluate the game's usability, acceptability, and its impact on participants' confidence and preparedness for managing their heart care. Feedback will be collected from adolescent participants, their parents, and healthcare providers, and the study will examine how the game influences communication during clinical visits.

How do Patients, Relatives and Healthcare Professionals View Person-centered Rehabilitation.

This research project aims to integrate insights from marketing and rehabilitation sciences to investigate Person Centered in rehabilitation. The research objectives are 1. to better understand what Person Centered Rehabilitation means in rehabilitation, 2. to understand how Person Centered Rehabilitation can be enhanced 3. to develop an instrument that can be used as a quality indicator to evaluate and monitor Person Centered Rehabilitation in rehabilitation 4. to understand the impact of Person Centered Rehabilitation on key outcomes in rehabilitation. To recruit respondents, we will work together with different rehabilitation centers and hospitals with a rehabilitation department. The interviews will be based on the Trajectory Touchpoint Technique. The interviews will be transcribed and uploaded in NVivo 14. To code the data, we will use the Gioia method which offers a systematic approach to bring qualitative rigor in qualitative research and contains of four steps. 1. We will code the data based on first-order terms. 2. we will systematically examine these first-order terms to organize them into second-order theory-centric themes. 3. we will investigate whether it is possible to categorize the second-order themes into aggregate dimensions which serve to summarize the key components of the emerging theory 4. when we have the full set of first-order terms, second-order themes and aggregate dimensions, we will have all ingredients for building a data structure. The data structure provides a graphical presentation of how we progressed from raw data to themes and dimensions.