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Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria
Sponsor: Emory University
Summary
The purpose of this project is to study the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attended Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.
Official title: Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD).
Key Details
Gender
FEMALE
Age Range
11 Years - Any
Study Type
INTERVENTIONAL
Enrollment
200
Start Date
1995-06
Completion Date
2037-07
Last Updated
2025-04-03
Healthy Volunteers
Yes
Conditions
Interventions
Metabolic camp
To use an recreational camp setting to instruct PKU females of reproductive age how to make responsible dietary and reproductive decisions.
Locations (1)
Emory University Department of Human Genetics
Atlanta, Georgia, United States