Clinical Research Directory

Inclusion Criteria: * Parent or doctor of a child screened for PKU, born during the inclusion phase of the study * Family's first exposure to PKU: the PKU child must be either the eldest or the first sibling to be diagnosed with PKU following neonatal screening Exclusion Criteria: * Failure to master the French language. * Child screened is neither the eldest nor the first sibling to be screened. * Refusal by the parents. * Any other reason which, in the investigator's judgement, would impair the participants' ability to follow the study protocol, or the interpretation of interview data (e.g. the participating parent has a history of serious psychiatric pathology, one of the parents died at the child's birth, Couples in which one of the members suffers from a known decompensated psychiatric pathology at the time of recruitment. Couples where one of the members is under legal protection or a security measure, etc …).